People with post-infectious diseases sometimes struggle to communicate the debilitating impact of their conditions. But a new technique can help them explain visually
Post-infectious diseases such as long Covid and ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) pose a puzzle to the medical establishment. Patients report debilitating symptoms such as extreme fatigue, shortness of breath or muscle pain, but often show normal results on routine medical checkups. And many sufferers do not look ill, leading some to question the severity of their disease. In the absence of diagnostic tools or an understanding of the pathophysiological processes, many sufferers find it difficult to share their experiences. They lack a verbal language that expresses the true impact of the illness.
Now, researchers from Oxford University are using the technique of “body mapping” to help patients better communicate the physical, cognitive and emotional dimensions of their illness to family, friends and health professionals.
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Visualising Long Covid 
This is a brilliant initiative. Body mapping offers a powerful and compassionate way for people with Long Covid and ME/CFS to visually express what words often fail to capture. It’s heartbreaking how often these invisible illnesses are misunderstood or minimized simply because the symptoms don’t show up on standard tests. Giving patients a creative and personal language to communicate their lived experience is a much-needed step toward better awareness, empathy, and medical support.
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