This article discusses how body mapping may be used into a toolkit that people with Long Covid can use for peer support. Drawing on three online body mapping workshops, two feedback sessions, and a survey conducted in 2024, we demonstrate how the format offers a flexible way for people managing severe symptoms to process andContinue reading “New publication on co-developing a body mapping toolkit for peer support with Long Covid patients”
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New report: The economic impacts of Long COVID in the UK
This report, based on a study conducted with Long Covid Support, sheds light on the economic toll of Long COVID in the UK. Based on in-depth interviews with people living with Long Covid and with advocacy organisations supporting them, the research shows how Long COVID disrupts working lives, often forcing people into reduced hours, careerContinue reading “New report: The economic impacts of Long COVID in the UK”
Webinar: Launching the Long Covid Body Mapping Toolkit
27 June 2025 Organised by Long Covid Support and University of OxfordPresenters: Dr Maaret Jokela-Pansini, Professor Beth Greenhough, Oonagh Cousins Watch the full webinar recording here: https://www.youtube.com/watch?v=oduHaNiiXmI&t=1s The launch event introduced the new Body Mapping Toolkit, developed through a research project led by the University of Oxford in collaboration with Long Covid Support and peopleContinue reading “Webinar: Launching the Long Covid Body Mapping Toolkit”
Journal article: Co-creating social science research priorities for Long Covid
Over 400 million people worldwide experience or have experience Long Covid. Existing research points to patient experiences, public health impacts, a lack of standardised diagnostic and treatment protocols and pathways and the need for patient involvement as key areas of concern. But what is not as clear is the extent to which these priorities areContinue reading “Journal article: Co-creating social science research priorities for Long Covid”
Visualising Long Covid @CS4Health Conference (Zurich)
The Health Working Group of the European Citizen Science Association (ECSA) organised its second conference on Citizen Science for Health at the ETH Zurich on 6-7 November 2025. It was a fantastic opportunity for our team to present our work in an environment where those with lived experience of illness, their carers, and families areContinue reading “Visualising Long Covid @CS4Health Conference (Zurich)”
Blog #2 Understanding the economic impacts of Long Covid: A qualitative study
By Amelia Zabika and Tom Crothers October 2025 In July 2025 we started a summer internship in the School of Geography and the Environment at the University of Oxford through the UNIQ+ program. Our project focused on trying to better understand the economic impacts of Long Covid. Long Covid is a term used to describeContinue reading “Blog #2 Understanding the economic impacts of Long Covid: A qualitative study”
Mapping out Long Covid on the body: interview by Radio New Zealand
15 March 2025 Our team members Oonagh Cousins and Maaret Jokela-Pansini were interviewed by Mihingarangi Forbes of the Saturday Morning program. You can listen to the interview here.
Body mapping Long Covid: interview in The Guardian
People with post-infectious diseases sometimes struggle to communicate the debilitating impact of their conditions. But a new technique can help them explain visually Post-infectious diseases such as long Covid and ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) pose a puzzle to the medical establishment. Patients report debilitating symptoms such as extreme fatigue, shortness of breath or muscleContinue reading “Body mapping Long Covid: interview in The Guardian”
Our research featured in the Neue Zürcher Zeitung (NZZ)
Geography of suffering – body maps express what words cannot ‘There are still no effective therapies for Long Covid. So-called body maps help to better capture the experience of those affected and thus deepen the understanding of the disease’. By Theres Lüthi. Link to full text (in German)
Supporting an NHS that’s there for people with ME and Long Covid: From #ThereForME to #ThereWithYou
#ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe ME/Long Covid. The campaign is supported by 23 organisations and smaller initiatives supporting people with ME/Long Covid. #ThereForME is calling for an NHS that’s there for people with ME and Long Covid. You can read our blog post forContinue reading “Supporting an NHS that’s there for people with ME and Long Covid: From #ThereForME to #ThereWithYou”
Visualising Long Covid 